Christel and I have been together for over 20 years now. We have had our ups and downs, but luckily, her type 1 diabetes has never been something that put a lot of stress on our relationship.
We get a lot of questions from people who have read Christel’s diabetes articles about how we make it work as a couple, so today I wanted to share some of my experiences of what it’s like to live with a spouse who has diabetes, and what I do to support her.
Have “The Diabetes Talk”
When Christel and I started dating, I would freak out a little every time she got a low blood sugar. Seeing your girlfriend shaking, sweating, and just looking miserable is not fun.
My natural response was, of course, to try and help, but I really had no idea what to do. Feeling unable to help the person you love is also not a good feeling!
If you are like me, you will probably try to help, even if you have no clue what to do. You most likely won’t do any harm, but you may annoy your partner quite a bit 😀
To get over this, find a good time to have “the diabetes talk” with your partner. Talk through the different situations, where you can help and where you just need to let them handle it.
Find a time when you are both in a good mood and it’s natural to have a long, intimate discussion (chatting over a really good dinner works for us).
Your approach should be something like this: “I love you and I want to support you as much as I can. Tell me how and when it’s helpful for me to support you, and when you would prefer it if I just give you space and let you deal with your diabetes yourself”.
Having this discussion should give you a much better understanding of what you can do to help. It will also make your spouse feel more comfortable about asking for help when he or she needs it.
Some of the agreements that work for us are:
- I can bring Christel a juice box or sugar when she is low, but after that, she doesn’t need or want my help. Just sitting there looking at her until she feels better is not helpful.
- We talk about food and meal plans a lot, but I never comment on anything she is about to eat. If she is eating cake, it’s because she has decided to do so, and asking “Should you really eat that?” does not make me popular.
- Christel is now ok with me telling others that she has diabetes and generally talking about it. This wasn’t always the case. She has never hidden that she has diabetes or been ashamed of it, but in the beginning, she just didn’t feel like it was anybody else’s business. Now we agree that it often makes life easier to let people know.
Support, but don’t try to manage their diabetes for them
No matter what you agree on in “the diabetes talk”, you both have to accept that your spouse is the one with diabetes, not you.
If at all possible, your spouse needs to be self-reliant and able to manage his or her diabetes without your help. If you get into a pattern where your spouse is relying on you for diabetes management, you are just setting yourself up for long-term problems.
Christel and I aren’t together for 24 hours every day (that would drive us both crazy), so we both need to know that she is perfectly fine managing her diabetes on her own.
There may come a day when this is no longer the case, but, hopefully, it won’t be for a very long time.
Support their healthy lifestyle, even if you have to make a few sacrifices
The absolute best way you can support your spouse is to be by his or her side when it comes to eating healthily and working out. A healthy lifestyle is great for anyone, but it’s critical for people with diabetes.
For you, that means you might as well start living a healthy life yourself. You can’t expect your spouse to eat healthy food and exercise if your idea of a good time is pizza and beer on the couch every day.
I am not saying that you have to give up all your favorite foods and only eat what your spouse eats, but try to find a balance that works for both of you.
For Christel and me, this means that we never have candy or cake in the house. When we go out to eat, we always check the menu first to make sure we can both get something we want to eat. We also often cook different meals for ourselves, even when we sit down and eat together at home.
Luckily, we both really enjoy working out and being active, so that has never been an issue for us. If you are not a fitness freak, try to find fun ways to be active together. Even if it’s just going for walks in your neighborhood, it helps a lot.
NEVER shame them or criticize how they manage their diabetes
If you try to be the diabetes police, your spouse will get tired of listening to you VERY quickly.
Some days, your spouse simply won’t manage his or her diabetes very well. Get used to it. You don’t manage your health perfectly every day either.
It can be extremely frustrating to see a person you love do something that can harm them in the long term, but you are not making it any better by giving them a lecture.
Living with diabetes is extremely frustrating at times, so there will be days where your spouse’s attitude can best be summed up as “Screw this. I’m doing whatever I like today”. You can try to gently encourage them to get back on track, and you can set a good example, but never even insinuate that they aren’t doing a good job managing their diabetes. That’s not the path to a happy marriage!
Instead, learn to recognize the times when your spouse is just sick and tired of having diabetes and try to show them some extra love on those days. That’s all you can do and it usually works.
Having diabetes will seem much less unmanageable for your spouse when you are cuddled up together watching a movie.
After living with a diabetic for over 20 years, my motto is “happy wife, happy life”. It has worked so far.
Henry
My wife of 20 years was recently diagnosed with Type 2 diabetes. This was no surprise, as both of us are overweight. In her case, quite obese.
Her father and grandmother died from complications of diabetes.
Her attitude most of the time is one of giving up. She jokes, sometimes cruelly, that she’f rather die from cakes than live without the, That was her grandmother’s philosophy, and it worked. Horribly.
I want to be able to let go, let her be happy, but she is eating herself to death. She won’t exercise, and any salad or healthy meal is usually followed up by a bag of cookies.
Do you have any suggestions? Thank you.
Tobias Oerum
Hi Henry, I have been thinking about your question for a while before answering as it’s a very difficult (and unfortunately also very common) challenge in relationships. The best advice I can give is:
1. Start by making lifestyle changes yourself. If you can start living healthier without making it seem like you are doing it to push or shame her, it may motivate her to make at least some changes as well. If you buy healthier groceries, skip the cookies or start walking more, she may be willing to join you in making changes after a while. Just don’t try to push your lifestyle on her. Be a motivation for her instead!
2. Let her know that you love her and want to grow old together. Again, don’t use it as a way to try and shame her into making changes. Just let her know whenever you have the chance.
3. If she at any point could be open to it, try to get her to talk to an eating disorder specialist. It’s very hard to overcome eating disorders without help!
That is the best advice I can give. I really hope that everything works out alright!
Loraine
What do you do, or how do you manage it to eat something sugary, without tempting your wife? I read that you don’t keep it in the house, but what if you are at a party or out to dinner? Or even alone? Thanks!
Tobias Oerum
Then I simply eat it :-). My wife will have sweets and cake as well sometimes, we just try not to have it in the house.
EWagner
Thank you so much for writing this. It was fantastic to read! Your first 2 “agreements” had me in stitches, because I’ve definitely been there, done that! I’ve been T1D for 35 years, and with my husband for the last 23 years. He has been my saving grace so many times, and has also saved me, literally, at other times. He is my voice of reason, and on days when I tell him, “I can’t diabetes today. It’s your turn.” He always replies with, “Okay. But you get it back tomorrow because I hate taking needles.” He’s the best part of my life for accepting me the way I came. Your wife has obviously found her hero as well. ?
Tobias Oerum
I am glad you liked it. It took me a while to figure out how to support Christel without being a major pain in the butt :-). Sounds like you have found a great spouse so please tell him “good job” from me.
Jerrod Beaulieu
OK… My wife is a type 1 as well and one of my BIG questions is how does this affect “adult time”? I have not been very successful at finding this info. My wife has had SEVERAL eye lazor surgeries, Neuropathy etc. if you have any suggestions as far as book, blogs whatever I am open to everything!
Laura
Thank you for sharing your side of the equation. I love your positive approach. I will definately be sharing this. It certainly helps to normalize type 1 by getting it out there and discussing it.
Mariel
Omg! It seems like if you are describing my husband and I. We also have been together for almost 16 yrs. And this post pretty much says how we deal with my diabetes to a t…?
Tobias Oerum
Awesome! Tell your husband from me that he’s a great guy 🙂
Lisa Ehrman
This is a wonderful post! One of my children has a spouse with Type 1 and they are doing very well in their marriage. They work out daily and eat healthy, too. I was encouraged to see how the two of you have kept a strong marriage and health for 16 years 🙂 Congrats.
Tobias Oerum
Thank you Lisa 😀
Sarah
Thank you so much for writing this. I’ve been a type 1 diabetic for 10.5 years and as my boyfriend and I think about getting married this is such a breath of fresh air and I’m definitely gonna show it to him later. It’s so great to actually see people talk about living with type 1 diabetes as usually you mainly see posts about type 2!
Tobias Oerum
I am glad you liked it Sarah. Good luck with getting married. Tell your boyfriend that being married to a diabetic is awesome 😀
Michelle
Thank you! This is beautiful. I will show this to my husband later. We have been together for 10 years. I was diagnosed with Type 1 diabetes over a year ago. It is so nice to know we are not alone.
Tobias Oerum
Thank you Michelle. I am glad you liked it.
Tove Maren
beautiful – every bit of it.
Tobias Oerum
Thank you 🙂